Events are the backbone of fundraising for RSRT.

Are you in?

Start An Event

Reverse Rett NYC 2018

November 7, 2018New York

We are so excited and grateful to say that the 10th Annual Reverse Rett NYC has raised almost $780,000 for RSRT. This is a tremendous outcome that makes a major difference to speeding RSRT’s research to a cure. It moves us closer than ever before to profoundly changing the lives of…

Read More

Reverse Rett Utah 2018

October 26, 2018Utah

We are overwhelmed with gratitude. The first ever Reverse Rett Utah raised over $75,000 for RSRT. Thank you to our wonderful friends and family who contributed so generously to help us change the lives of our loved ones with Rett. As you heard at the event, our children and grandchildren…

Read More

Jocelyn’s Journey

October 20, 2018California

We are so excited and grateful to say that Jocelyn’s Journey 2018 has raised $103,000 and counting! No words adequately express our gratitude to so many friends and family who came out to support us one last time this year. Our theme was ALL IN, and you have done us…

Read More

Happy Hour to Help End Rett 2018

October 13, 2018Pennsylvania

We are thrilled to tell you that the Fifth Annual Happy Hour to Help End Rett raised nearly $85,000 for RSRT! Every dollar of that advances RSRT closer to being able to fully execute on its strategic research plan, Roadmap to a Cure. We feel incredibly fortunate to have so many friends…

Read More

Reverse Rett LA 2018

October 12, 2018California

We are overwhelmed with gratitude. Thanks to the generosity of so many people, this year’s Reverse Rett LA has raised over $1.2 million for RSRT. That’s a new record, for this event and for any Rett event. What’s most important is how much this funding matters to the research and…

Read More

Quest for a Cure 2018

Septemer 30, 2018Michigan

The 9th annual Quest for a Cure Walkathon will be held at VFW Park in Royal Oak, Michigan. Please join the eight Detroit-area families that organize this fun event and the hundreds of supporters who come out to make a difference to the research.

Read More

Reverse Rett DC 2018

September 24, 2018DC

We are overwhelmed with gratitude. The first annual Reverse Rett DC raised over $160,000, with contributions still coming in. This is thanks to your generosity and your compassion for our loved ones who struggle so bravely with Rett. As you heard at the event, we have every reason to believe…

Read More

Reverse Rett Melbourne 2018

September 8, 2018International

In honor of their daughter Mia and the 350,000 other children and adults living with Rett Syndrome worldwide, Adrian and Chantal Mancini are hosting The First Annual Reverse Rett Melbourne Australia Gala on September 8. All support goes to RSRT to help it push ahead with its strategic research plan,…

Read More

Rohan’s Quest 2018

August 25, 2018California

ROHAN’S MESSAGE TO US ALL Although our life is hard at times, Rohan provides a perspective … we are incredibly lucky that we can walk, talk, eat, laugh, make choices … pursue our dreams …. In other words, lead a “normal” life! It is this lack of “normalcy” that brings…

Read More

Reverse Rett Philadelphia

July 14, 2018Pennsylvania

We are so excited to say that Reverse Rett Philadelphia has raised over $100,000 for RSRT! This makes a tremendous difference to the research and to enabling RSRT to carry out its strategic plan, Roadmap to a Cure. The four families that spearheaded this event, the Adairs, the Cassanos, the Barish-Farringtons…

Read More

Reverse Rett Chicago 2018

May 31, 2018Illinois

Words cannot adequately express how grateful we are to every single supporter of Reverse Rett Chicago. We are thrilled to announce that this year’s gala has raised more than $330,000, a new record for the event, and contributions are still coming in. Since launching four years ago, Reverse Rett Chicago…

Read More

Out Run Rett 5K

May 5, 2018New York

We are so thrilled, honored, and grateful that nearly 250 people came out this year on an absolutely beautiful day for Out Run Rett! Thank you to every single one of you for making a difference to speeding the research to a cure for Maren, Rachel, and the 350,000 other…

Read More

Miracle for Molly 2018

April 26, 2018New Jersey

We are grateful, honored, and thrilled to let you know that the 3rd Annual Miracle for Molly at the Merion was a huge success. We are anticipating several matching gifts and additional donations, and once those come in we will hit close to $110,000 raised for the Rett Syndrome Research…

Read More

Reverse Rett Minneapolis

April 12, 2018Minnesota

  We are thrilled to report that Reverse Rett Minneapolis raised almost $80,000, with donations still coming in! This is the result of the generosity and compassion of nearly 300 people who supported the event. Thank you from the bottom of our hearts. The beneficiary of our event, the Rett…

Read More

Reverse Rett Kansas City 2018

March 29, 2018Missouri

  We are so grateful to every single person who supported Reverse Rett Kansas City. We’re proud and excited to let you know that the event raised almost $35,000 for the Rett Syndrome Research Trust, with contributions still coming in. Thank you from the bottom of our hearts for your…

Read More

Reverse Rett Austin 2018

February 10, 2018Texas

We are overwhelmed by your generosity and compassion. With great excitement and huge gratitude, we are thrilled to say that Reverse Rett Austin raised over $140,000, with donations still coming in! This is a remarkable outcome. Thank you from the bottom of our hearts for making such a difference to…

Read More

Cocktails for a Cure 2018

January 9, 2018New York

Thank you from the bottom of our hearts for your support. We hope you enjoyed the evening and at the same time learned about Rett Syndrome and the push to make it the first neurological disorder that can be cured. This is a cause where every dollar contributed matters. Funding…

Read More

Art for Ruby 2017

2017Maryland

On behalf of Ruby Randol and 350,000 other girls and women suffering with Rett Syndrome, please support RSRT’s Roadmap to a Cure as generously as possible. We thank you from the bottom of our hearts.   Committee Megan & Rick Abbruzzese Ridgley & Justin Bowman Emmie & Dave Frank Meaghan…

Read More

Reverse Rett NYC 2017

November 13, 2017 @ 6:30pmNew York

By all measures, Reverse Rett NYC 2017 was a huge success. We had a record crowd, with over 550 people joining us at an elegant new venue in Midtown. We also blew past all previous fundraising records for this event—approaching $900,000 raised for the research! It’s a remarkable result, and…

Read More

Jocelyn’s Journey 2017

October 21, 2017California

Bridging the gap between hope and a cure! Jocelyn’s Journey is an annual event that raises funds in support of research that is moving us towards effective treatments and, ultimately, a cure for Rett Syndrome, a severely debilitating neurological disorder.  100% of Jocelyn’s Journey funds are directed to the Rett…

Read More

Reverse Rett LA 2017

October 13, 2017 @ 7:00pmCalifornia

We thank you from the bottom of our hearts for your incredible generosity and for sharing with us the conviction that it’s imperative that we change the lives of those who suffer with this terrible disorder. Every dollar you’ve given moves the needle on scientific goals and financial goals for…

Read More

Happy Hour to Help End Rett 2017

October 7, 2017Pennsylvania

A special evening in the heart of Philadelphia to benefit the Rett Syndrome Research Trust and its bold three-year strategic research plan, Roadmap to a Cure. Launched early in 2017, Roadmap to a Cure prioritizes research approaches that attack Rett at its genetic root. The goal is to dramatically change…

Read More

For Love of Lily 2016

September 20, 2017 @ 6:00pmPennsylvania

Dear friends and family, We were overwhelmed by your incredible support of For Love of Lily.  Your great generosity resulted in over $70,000 for research on Rett Syndrome.  Thank you from the bottom of our hearts for your compassion, your thoughtfulness, and for making a difference. We hope you came…

Read More

Cure MECP2 Bucks County

September 14, 2017Pennsylvania

The Rett Syndrome Research Trust’s Duplication Fund spurs and supports research on MECP2 Duplication Syndrome, a devastating neurological disorder. With support from the Duplication Fund, in 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated for the first time that a dramatic reversal of Duplication Syndrome is possible. Her…

Read More

Rides for Rett 2017

August 19, 2017Pennsylvania

Chris and Amanda Cope and Tony and Pam Scarano invite you to the Fourth Annual Rides for Rett Car Show on Saturday, August 19, 2017 in Berwick, PA. This is a benefit event and all proceeds will support the Rett Syndrome Research Trust. The car show is in honor of our…

Read More

EVAning of Hope 2017

July 8, 2017New York

We are overwhelmed by the incredible support and compassion of so many people.  Thanks to you, we set new records this year at EVAning of Hope, with more than 400 people attending and total dollars raised of over $230,000.  This is remarkable, and all of you, our amazing friends and…

Read More

Reverse Rett Chicago 2017

May 25, 2017Illinois

We are overwhelmed by the generosity and compassion of so many who supported Reverse Rett Chicago 2017. With the deepest sense of gratitude, we are thrilled to report that this year’s gala was a rousing success. Together you contributed over $300,000 to this urgent and promising cause. 100% of this…

Read More

Out Run Rett 5K 2017

May 20, 2017New York

We want to thank everyone who came out with such energy and enthusiasm for this year’s Out Run Rett 5K. With great gratitude and pride, we are thrilled to report that the event raised over $25,000 for the Rett Syndrome Research Trust. Thank you to so many that made it…

Read More

Miracle for Molly 2017

April 20, 2017New Jersey

Dear Friends, We are overwhelmed with your generosity, compassion, and care. This year’s Miracle for Molly event raised almost $70,000 for the Rett Syndrome Research Trust. In fact, with matching gifts and other donations still coming in, we expect to reach over $90,000. We could not be more grateful to…

Read More

Everything for Emma

April 7, 2017Pennsylvania

Dear Friends, We couldn’t be more grateful to our all our friends and family who came out in support of Everything for Emma. Together you contributed nearly $43,000 to the Rett Syndrome Research Trust. Matching gifts and other contributions are still coming in and we expect to reach nearly $60,000…

Read More

Cheers for Charlotte

December 10, 2016California

Andrea and Ron Bryman invite you to a special evening of cocktails and hors d’oeuvres to benefit the Rett Syndrome Research Trust. RSRT is a non-profit that is spurring research that is leading to treatments and a cure for Rett Syndrome, the severe neurological disorder that our daughter, Charlotte, and 350,000…

Read More

Reverse Rett NYC 2016

November 7, 2016New York

We thank you with all our hearts for caring so deeply about this cause and for your tremendous generosity. We are thrilled to report that Reverse Rett NYC 2016 has raised nearly $550,000 for the research, with donations still coming in every day. Each of you who supported the event…

Read More

Jammin’ for Jaycee

October 23, 2016Massachussetts

Please support Jaycee’s life journey with Rett Syndrome, a rare neurological disorder comparable to autism, cerebral palsy, parkinsons and epilepsy combined. This is a fundraiser to help fund research for treatments and a cure for this debilitating disease. Jaycee Danforth is the 2 1/2 year old daughter of Steven Danforth…

Read More

Reverse Rett LA 2016

October 20, 2016California

No mere “thank you” does justice to what we, the Reverse Rett LA Gala Co-chairs, want to say to you. We are overwhelmed by your generosity and by your commitment to helping us change not only our own daughters’ lives, but also the lives of more than 350,000 other brave…

Read More

Happy Hour to Help End Rett 2016

October 8, 2016Pennsylvania

A special evening benefiting Rett Research in the heart of Philadelphia. Spearheaded by Kristen & Shawn Connor, parents to 5-year-old Brynn Clare. Light Fare – Cocktails – Basket Raffle – Silent Auction

Read More

Jocelyn’s Journey 2016

October 1, 2016California

Bridging the gap between hope and a cure! Jocelyn’s Journey is an annual event that raises funds in support of research that is moving us towards effective treatments and, ultimately, a cure for Rett Syndrome, a severely debilitating neurological disorder.  100% of Jocelyn’s Journey funds are directed to the Rett…

Read More

Quest for a Cure 2017

Septemer 25, 2016Michigan

Join us for another walkathon to support Rett research. The event is organized by the following six families:  the MacDonalds, the Petersons, the Pettys, the Rokickis, the Scappaticcis, and the Zerials.

Read More

Cure MECP2 Bucks County 2016

Septemer 22, 2016Pennsylvania

The Rett Syndrome Research Trust’s Duplication Fund spurs and supports research on MECP2 Duplication Syndrome, a devastating neurological disorder. With support from the Duplication Fund, in 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated for the first time that a dramatic reversal of Duplication Syndrome is possible. Her…

Read More

Rides for Rett 2016

August 20, 2016Pennsylvania

Chris and Amanda Cope and Tony and Pam Scarano invite you to the Third Annual Rides for Rett Car Show on Saturday, August 20, 2016 in Berwick, PA. This is a benefit event and all proceeds will support the Rett Syndrome Research Trust. The car show is in honor of…

Read More

Rohan’s Quest for a Normal Life 2016

June 4, 2016California

We are overwhelmed and deeply moved by your care, compassion, and wonderfully generous support. Thank you so much for making our First Annual Rohan’s Quest for a Normal Life Fundraiser a success! It gives Rohan and others like him who are affected by MECP2 Duplication, hope and a chance at a healthy…

Read More

Studio 54 | Black & White Party

June 4, 2016Connecticut

We couldn’t be more grateful to everyone who supported the Studio 54 Black and White Party. Together, all of you contributed nearly $15,000 to research on Rett Syndrome. More than 350,000 girls and women around the world are afflicted with Rett, including Zoe Rothschild. Rett Syndrome results in complete disability…

Read More

Reverse Rett Chicago 2016

June 2, 2016Illinois

We are overwhelmed by the generosity and compassion of so many who supported Reverse Rett Chicago 2017. With the deepest sense of gratitude, we are thrilled to report that this year’s gala was a rousing success. Together you contributed nearly $300,000 to this urgent and promising cause. 100% of this…

Read More

Bella’s Ball

May 15, 2016Massachussetts

We are cordially inviting every princess and knight in the realm to dress to impress and dance for a cure!The evening activities will include Food, Music, and Raffles. Please join us in our fight to end Rett Syndrome.   What is Rett Syndrome? Rett Syndrome is a genetic neurological disorder…

Read More

Out Run Rett 5K 2016

May 7, 2016New York

Out Run Rett 5K is an opportunity to encourage community support for girls who are sidelined from so many of even the simplest activities because of Rett Syndrome. Maren DeSantis, a Mattituck resident, was diagnosed with Rett Syndrome in December 2012. Right before her first birthday, Maren lost her words…

Read More

Art for Ruby 2016

May 5, 2016Maryland

Please join us for a special evening to benefit the Rett Syndrome Research Trust.  Together we can make a major difference to advancing the research that is leading to treatments and ultimately a cure for Ruby Randol and 350,000 other girls and women who struggle every moment of every day…

Read More

Miracle for Molly 2016

April 28, 2016New Jersey

Greg and Danielle Foley invite you to a special evening at the Merion to raise funds and awareness for Rett Syndrome research.  Their daughter, Molly, and 350,000 other girls and women struggle with this severe neurological disorder. We can’t wait for an exciting and moving evening that will include dinner,…

Read More

Concert for Rett

March 12, 2016Pennsylvania

Please join us for a special concert to benefit the Rett Syndrome Research Trust.  Through our granddaughter Eleanor, our admiration and our hopes extend to all the other girls and women—350,000 of them around the world—who struggle with this severe disorder. This concert is for all of them, to move…

Read More

GP2C Disney Princess Marathon

February 18, 2016Florida

Team up with Girl Power 2 Cure at the Disney Princess Half Marathon Weekend in 2016. Unleash your inner princess and run for the tens of thousands of girls suffering from Rett Syndrome who can’t. Funds raised through this event support research through the Rett Syndrome Research Trust.

Read More

7th Annual Reverse Rett NYC

November 2, 2015New York

Thank you, sponsors and everyone, for making the Reverse Rett NYC Gala a tremendous success and helping to raise over $550,000 for research! The event was spearheaded by Rachael & Jason Rothschild, parents to Zoe; and amazing Co-Chairs and Committee members, 14 of whom are Rett parents or grandparents. EVENT Co–CHAIRS…

Read More

Reverse Rett LA 2015

October 29, 2015California

This year’s gala in Los Angeles raised more funds than any Rett event ever—a remarkable $880,000! The event is led by Co-chairs Heidi & Jonathan Epstein, parents to Hannah, and Marci & Rudy Valner, parents to Gaby; as well as a passionate and dedicated Committee and Junior Committee. The words…

Read More