Events account for more than 50% of funds raised for RSRT.

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Reverse Rett LA 2015

October 29, 2015 @ 7:00pmCalifornia

This year’s gala in Los Angeles raised more funds than any Rett event ever—a remarkable $880,000! The event is led by Co-chairs Heidi & Jonathan Epstein, parents to Hannah, and Marci & Rudy Valner, parents to Gaby; as well as a passionate and dedicated Committee and Junior Committee. The words…

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7th Annual Reverse Rett NYC

November 2, 2015 @ 6:30pmNew York

Thank you, sponsors and everyone, for making the Reverse Rett NYC Gala a tremendous success and helping to raise over $550,000 for research! The event was spearheaded by Rachael & Jason Rothschild, parents to Zoe; and amazing Co-Chairs and Committee members, 14 of whom are Rett parents or grandparents. EVENT Co–CHAIRS…

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GP2C Disney Princess Marathon

February 18-21Florida

Team up with Girl Power 2 Cure at the Disney Princess Half Marathon Weekend in 2016. Unleash your inner princess and run for the tens of thousands of girls suffering from Rett Syndrome who can’t. Funds raised through this event support research through the Rett Syndrome Research Trust.

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Concert for Rett

March 12, 2016Pennsylvania

Please join us for a special concert to benefit the Rett Syndrome Research Trust.  Through our granddaughter Eleanor, our admiration and our hopes extend to all the other girls and women—350,000 of them around the world—who struggle with this severe disorder. This concert is for all of them, to move…

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Miracle for Molly 2016

April 28, 2016New Jersey

Greg and Danielle Foley invite you to a special evening at the Merion to raise funds and awareness for Rett Syndrome research.  Their daughter, Molly, and 350,000 other girls and women struggle with this severe neurological disorder. We can’t wait for an exciting and moving evening that will include dinner,…

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Art for Ruby 2016

May 5, 2016Maryland

Please join us for a special evening to benefit the Rett Syndrome Research Trust.  Together we can make a major difference to advancing the research that is leading to treatments and ultimately a cure for Ruby Randol and 350,000 other girls and women who struggle every moment of every day…

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Out Run Rett 5K 2016

May 7, 2016New York

Out Run Rett 5K is an opportunity to encourage community support for girls who are sidelined from so many of even the simplest activities because of Rett Syndrome. Maren DeSantis, a Mattituck resident, was diagnosed with Rett Syndrome in December 2012. Right before her first birthday, Maren lost her words…

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Bella’s Ball

May 15, 2016Massachussetts

We are cordially inviting every princess and knight in the realm to dress to impress and dance for a cure!The evening activities will include Food, Music, and Raffles. Please join us in our fight to end Rett Syndrome.   What is Rett Syndrome? Rett Syndrome is a genetic neurological disorder…

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Reverse Rett Chicago 2016

June 2, 2016Illinois

No words could adequately express how grateful we are to all who came to and supported Reverse Rett Chicago. This year, 375 of you joined us to help change the lives of those afflicted with Rett Syndrome, and over the past two years you have contributed a total of over…

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Studio 54 | Black & White Party

June 4, 2016Connecticut

We couldn’t be more grateful to everyone who supported the Studio 54 Black and White Party. Together, all of you contributed nearly $15,000 to research on Rett Syndrome. More than 350,000 girls and women around the world are afflicted with Rett, including Zoe Rothschild. Rett Syndrome results in complete disability…

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Rohan’s Quest for a Normal Life

June 4, 2016California

We are overwhelmed and deeply moved by your care, compassion, and wonderfully generous support. Thank you so much for making our First Annual Rohan’s Quest for a Normal Life Fundraiser a success! It gives Rohan and others like him who are affected by MECP2 Duplication, hope and a chance at a healthy…

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Rides for Rett

August 20, 2016Pennsylvania

Chris and Amanda Cope and Tony and Pam Scarano invite you to the Third Annual Rides for Rett Car Show on Saturday, August 20, 2016 in Berwick, PA. This is a benefit event and all proceeds will support the Rett Syndrome Research Trust. The car show is in honor of…

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Cure MECP2 Bucks County 2016

Septemer 22, 2016Pennsylvania

The Rett Syndrome Research Trust’s Duplication Fund spurs and supports research on MECP2 Duplication Syndrome, a devastating neurological disorder. With support from the Duplication Fund, in 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated for the first time that a dramatic reversal of Duplication Syndrome is possible. Her…

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Quest for a Cure

Septemer 25, 2016Michigan

Join us for another walkathon to support Rett research. The event is organized by the following six families:  the MacDonalds, the Petersons, the Pettys, the Rokickis, the Scappaticcis, and the Zerials.

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Jocelyn’s Journey 2016

October 1, 2016California

Bridging the gap between hope and a cure! Jocelyn’s Journey is an annual event that raises funds in support of research that is moving us towards effective treatments and, ultimately, a cure for Rett Syndrome, a severely debilitating neurological disorder.  100% of Jocelyn’s Journey funds are directed to the Rett…

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Happy Hour to Help End Rett 2016

October 8, 2016Pennsylvania

A special evening benefiting Rett Research in the heart of Philadelphia. Spearheaded by Kristen & Shawn Connor, parents to 5-year-old Brynn Clare. Light Fare – Cocktails – Basket Raffle – Silent Auction

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Reverse Rett LA 2016

October 20, 2016 @ 7:00pmCalifornia

No mere “thank you” does justice to what we, the Reverse Rett LA Gala Co-chairs, want to say to you. We are overwhelmed by your generosity and by your commitment to helping us change not only our own daughters’ lives, but also the lives of more than 350,000 other brave…

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Jammin’ for Jaycee

October 23, 2016Massachussetts

Please support Jaycee’s life journey with Rett Syndrome, a rare neurological disorder comparable to autism, cerebral palsy, parkinsons and epilepsy combined. This is a fundraiser to help fund research for treatments and a cure for this debilitating disease. Jaycee Danforth is the 2 1/2 year old daughter of Steven Danforth…

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Reverse Rett NYC 2016

November 7, 2016 @ 6:30pmNew York

We thank you with all our hearts for caring so deeply about this cause and for your tremendous generosity. We are thrilled to report that Reverse Rett NYC 2016 has raised nearly $550,000 for the research, with donations still coming in every day. Each of you who supported the event…

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Cheers for Charlotte

December 10, 2016California

Andrea and Ron Bryman invite you to a special evening of cocktails and hors d’oeuvres to benefit the Rett Syndrome Research Trust. RSRT is a non-profit that is spurring research that is leading to treatments and a cure for Rett Syndrome, the severe neurological disorder that our daughter, Charlotte, and 350,000…

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Everything for Emma

April 7, 2017Pennsylvania

Dear Friends, We couldn’t be more grateful to our all our friends and family who came out in support of Everything for Emma. Together you contributed nearly $43,000 to the Rett Syndrome Research Trust. Matching gifts and other contributions are still coming in and we expect to reach nearly $60,000…

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Miracle for Molly

April 20, 2017New Jersey

Dear Friends, We are overwhelmed with your generosity, compassion, and care. This year’s Miracle for Molly event raised almost $70,000 for the Rett Syndrome Research Trust. In fact, with matching gifts and other donations still coming in, we expect to reach over $90,000. We could not be more grateful to…

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Out Run Rett 5K

May 20, 2017New York

Superheroes wanted. Maren has Rett Syndrome. Rett is not hereditary and there are no known risk factors. There is also little warning. Within a few months of her first birthday, our seemingly “normal” little girl lost her newly formed words and we saw the first signs of what has become…

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