Press Releases

Rett Syndrome Research Trust Launches the Rett Syndrome Global Registry: A Pioneering Parent-Reported Platform Designed to Expedite the Development of Genetic Medicines
November 9, 2023
The Rett Syndrome Research Trust (RSRT) is excited to announce the launch of the Rett Syndrome Global Registry, a fully-remote platform for ...
Rett Syndrome Research Trust's Genetic Medicines Summit Sets the Stage for Accelerated Therapeutic Development
October 10, 2023
Trumbull, CT – The Rett Syndrome Research Trust (RSRT) is delighted to announce the successful conclusion of the inaugural Rett Syndrome ...
Rett Syndrome Research Trust Awards $1.1 Million to Emerald Innovations to Develop Novel Invisible Biosensor for Objective Measures of Rett Symptoms
February 21, 2023
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is excited to announce a $1.1 million dollar research award to Dina Katabi, PhD, and her ...
Alba Tull Makes $500,000 Gift to the Rett Syndrome Research Trust
February 7, 2023
TRUMBULL, CT — Alba Tull has made a generous donation of $500,000 to the Rett Syndrome Research Trust (RSRT) for a clinical study to determine ...
Study Funded by the Rett Syndrome Research Trust Demonstrates First-Ever Symptom Improvement in a Mouse Model of Any Human Disease Using RNA Editing
August 11, 2022
TRUMBULL, CT – This week the Proceedings of the National Academy of Sciences published a paper online demonstrating that RNA editing can ...
Neurogene’s Gene Replacement Program is the Eighth Biopharmaceutical Company Program Facilitated by the Rett Syndrome Research Trust
May 18, 2022
TRUMBULL, CT – The research and resource development efforts of the Rett Syndrome Research Trust (RSRT) have helped generate an eighth ...
Rett Syndrome Research Trust Joins the Bespoke Gene Therapy Consortium
February 3, 2022
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) has joined the Accelerating Medicines Partnership® Bespoke Gene Therapy Consortium ...
RSRT Invests an Additional $3.1 Million in the Plan for a Rett Syndrome Cure
January 27, 2022
The Rett Syndrome Research Trust (RSRT) is dedicating a further $3.1 million to drive forward the CURE 360 agenda aimed to cure Rett syndrome by ...
Philanthropist Alba Tull Makes $1M Gift to Rett Syndrome Research Trust
November 16, 2021
Alba Tull, philanthropist, founder of First Light Capital Group, and co-founder of Tull Family Foundation (TFF), has made a $1 million donation ...
Rett Syndrome Research Trust Announces Development of the ORCA Measure to Assess Communication Ability of Individuals with Rett Syndrome
June 16, 2021
The Rett Syndrome Research Trust has partnered with Duke University’s Center for Health Measurement to adapt and validate a first-of-its kind ...
Rett Syndrome Research Trust Establishes Translational Medicine Advisory Board
May 19, 2021
Four nationally prominent leaders in medical research join the advisory board to advance progress toward a cure for Rett Syndrome The Rett ...
Genetic Editing Milestone in Mouse Model of Rett Syndrome
July 14, 2020
Editing technique repairs mutant MeCP2 RNA and restores MeCP2 protein function A genomic error that causes Rett Syndrome, a serious lifelong ...
RSRT Partners with VivoSense to Develop Digital Biomarkers
March 17, 2020
NEWPORT COAST, CA — VivoSense announces a series of new collaborations with the Rett Syndrome Research Trust (RSRT) to develop digital ...
We’ve awarded $8.6 million in 2019 to preeminent researchers in our pursuit of a cure.
January 30, 2020
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) committed $8.6 million in 2019 for breakthrough research focused on curing Rett, ...
RSRT Awards $10 Million to Preeminent Researchers in Pursuit of Curing Devastating Neurological Disorder
January 22, 2019
TRUMBULL, CT — Thanks to a $10 million investment in Rett Syndrome research in 2018—the largest annual award since the organization was ...
RSRT Names Timothy A. Riley Chief Scientific Officer and Chief Business Officer; Randall Carpenter Transitions to Chief Medical Officer
September 25, 2018
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is delighted to announce that Timothy A. Riley, Ph.D. has joined the organization in the ...
Marc Tesler Joins Rett Syndrome Research Trust Board of Trustees
June 14, 2018
The Rett Syndrome Research Trust is pleased to announce that Marc Tesler has joined its Board of Trustees. Marc’s granddaughter, Magnolia, who ...
Rett Syndrome Research Trust Awards $6.2 Million in 2017 to Speed a Cure for Rett Syndrome
January 30, 2018
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) announced today research awards of $6.2 million made in 2017. RSRT’s sole and urgent ...