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Press Releases

August 11, 2022
TRUMBULL, CT – This week the Proceedings of the National Academy of Sciences published a paper online demonstrating that RNA editing can ...
May 18, 2022
TRUMBULL, CT – The research and resource development efforts of the Rett Syndrome Research Trust (RSRT) have helped generate an eighth ...
February 3, 2022
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) has joined the Accelerating Medicines Partnership® Bespoke Gene Therapy Consortium ...
January 27, 2022
The Rett Syndrome Research Trust (RSRT) is dedicating a further $3.1 million to drive forward the CURE 360 agenda aimed to cure Rett syndrome by ...
January 18, 2022
Comprehensive, accessible data follows FDA guidelines and has the potential to speed up development of curative therapeutics to address the ...
November 16, 2021
Alba Tull, philanthropist, founder of First Light Capital Group, and co-founder of Tull Family Foundation (TFF), has made a $1 million donation ...
June 16, 2021
The Rett Syndrome Research Trust has partnered with Duke University’s Center for Health Measurement to adapt and validate a first-of-its kind ...
May 19, 2021
Four nationally prominent leaders in medical research join the advisory board to advance progress toward a cure for Rett Syndrome The Rett ...
July 14, 2020
Editing technique repairs mutant MeCP2 RNA and restores MeCP2 protein function A genomic error that causes Rett Syndrome, a serious lifelong ...
March 17, 2020
NEWPORT COAST, CA — VivoSense announces a series of new collaborations with the Rett Syndrome Research Trust (RSRT) to develop digital ...
January 30, 2020
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) committed $8.6 million in 2019 for breakthrough research focused on curing Rett, ...
January 22, 2019
TRUMBULL, CT — Thanks to a $10 million investment in Rett Syndrome research in 2018—the largest annual award since the organization was ...
September 25, 2018
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is delighted to announce that Timothy A. Riley, Ph.D. has joined the organization in the ...
June 14, 2018
The Rett Syndrome Research Trust is pleased to announce that Marc Tesler has joined its Board of Trustees. Marc’s granddaughter, Magnolia, who ...
January 30, 2018
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) announced today research awards of $6.2 million made in 2017. RSRT’s sole and urgent ...
January 25, 2018
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is pleased to announce that James Wilson, MD, PhD, director of the University of ...
October 5, 2017
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) announced today the launch of the Rett Syndrome Clinical Trial Consortium. The primary ...
June 7, 2017
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is excited to announce that AveXis, Inc., has committed to advance a gene therapy ...