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Press Releases

March 13, 2025
RSRT Appoints Amy Gilliland to its Board of Trustees
Trumbull, CT  – Rett Syndrome Research Trust (RSRT), the organization working to cure Rett syndrome, is pleased to announce that Amy ...
June 5, 2024
RSRT Launches "Roadmap to Cures" to Advance Next-Generation Genetic Medicines into Clinical Trials
Trumbull, CT Rett Syndrome Research Trust (RSRT), the organization working to cure Rett syndrome, announced the launch of a bold new initiative: ...
April 10, 2024
RSRT Launches the MECP2 Editing Consortium With Goal to Advance Programs to Clinical Trials
Trumbull, CT - The Rett Syndrome Research Trust (RSRT) has taken a significant stride in the pursuit of innovative genetic medicines for Rett ...
March 28, 2024
PMD Solutions Supports RSRT's Biosensor VIBRANT Study for Rett Syndrome with Donation of FDA-cleared RespiraSense Devices and Analytics
Trumbull, CT - PMD Solutions, a leading provider of innovative healthcare technologies, is proud to announce its partnership with the Rett ...
January 31, 2024
Rett Syndrome Research Trust Awards a Record $10.3 Million in 2023 to Advance a Cure for Rett Syndrome
The Rett Syndrome Research Trust (RSRT) continues to spearhead groundbreaking research in its pursuit of a cure for Rett syndrome. RSRT has ...
January 16, 2024
The Rett Syndrome Research Trust Strengthens Research Team with Addition of Robert Deans as Chief Technology Officer
The Rett Syndrome Research Trust (RSRT) is excited to announce the addition of Robert Deans, PhD, as Chief Technology Officer, Head of Research. ...
November 9, 2023
Rett Syndrome Research Trust Launches the Rett Syndrome Global Registry: A Pioneering Parent-Reported Platform Designed to Expedite the Development of Genetic Medicines
The Rett Syndrome Research Trust (RSRT) is excited to announce the launch of the Rett Syndrome Global Registry, a fully-remote platform for ...
October 10, 2023
Rett Syndrome Research Trust's Genetic Medicines Summit Sets the Stage for Accelerated Therapeutic Development
Trumbull, CT – The Rett Syndrome Research Trust (RSRT) is delighted to announce the successful conclusion of the inaugural Rett Syndrome ...
February 21, 2023
Rett Syndrome Research Trust Awards $1.1 Million to Emerald Innovations to Develop Novel Invisible Biosensor for Objective Measures of Rett Symptoms
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is excited to announce a $1.1 million dollar research award to Dina Katabi, PhD, and her ...
February 7, 2023
Alba Tull Makes $500,000 Gift to the Rett Syndrome Research Trust
TRUMBULL, CT — Alba Tull has made a generous donation of $500,000 to the Rett Syndrome Research Trust (RSRT) for a clinical study to determine ...
August 11, 2022
Study Funded by the Rett Syndrome Research Trust Demonstrates First-Ever Symptom Improvement in a Mouse Model of Any Human Disease Using RNA Editing
TRUMBULL, CT – This week the Proceedings of the National Academy of Sciences published a paper online demonstrating that RNA editing can ...
May 18, 2022
Neurogene’s Gene Replacement Program is the Eighth Biopharmaceutical Company Program Facilitated by the Rett Syndrome Research Trust
TRUMBULL, CT – The research and resource development efforts of the Rett Syndrome Research Trust (RSRT) have helped generate an eighth ...
February 3, 2022
Rett Syndrome Research Trust Joins the Bespoke Gene Therapy Consortium
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) has joined the Accelerating Medicines Partnership® Bespoke Gene Therapy Consortium ...
January 27, 2022
RSRT Invests an Additional $3.1 Million in the Plan for a Rett Syndrome Cure
The Rett Syndrome Research Trust (RSRT) is dedicating a further $3.1 million to drive forward the CURE 360 agenda aimed to cure Rett syndrome by ...
November 16, 2021
Philanthropist Alba Tull Makes $1M Gift to Rett Syndrome Research Trust
Alba Tull, philanthropist, founder of First Light Capital Group, and co-founder of Tull Family Foundation (TFF), has made a $1 million donation ...
June 16, 2021
Rett Syndrome Research Trust Announces Development of the ORCA Measure to Assess Communication Ability of Individuals with Rett Syndrome
The Rett Syndrome Research Trust has partnered with Duke University’s Center for Health Measurement to adapt and validate a first-of-its kind ...
$40M
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