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Repairing the Underlying Cause of Rett Through RNA Editing

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RSRT Executive Director Featured in New York Times Article

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Monica & Chelsea Coenraads

Making Rett History

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $66 million since 2008, we strive to put ourselves out of business as soon as possible.

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Every dollar of the $66 million that RSRT has raised can be traced back to a connection that the donor has with a family affected by Rett Syndrome or MECP2 disorder.  If your daughter, granddaughter, niece, godchild, or the daughter of your close friend has Rett then we encourage you to join us in our effort to Make Rett History.

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MECP2 Duplication

MECP2 Duplication Syndrome

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Rett Daughter & Father

Making Rett History

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Learn About our Roadmap to a Cure