Our community has never been silent about our cause. We’ve been loud — making noise for decades. Pushing. Fundraising. Sharing our stories. Now, with the science barreling ahead, it’s time to reignite the conversation (and spark new ones) to keep that momentum sprinting forward.
This Rett Awareness month, let’s show up by speaking up. We’ve got you covered...
Connection is Key
Despite the hyperconnected world we live in, many of us, especially Rett families, still feel isolated. Raising awareness flips that script by closing the gaps between us. When you tell someone new about Rett in your words, you're creating an intimate bond. You're also widening support for this science that will make an impact far beyond our community alone.
Your story matters. Sharing the Rett experience, the progress, the hopes we have for our children—these have the power to inspire action.
Food Fuel for Thought
Rett is rare, yet the progress towards cures is undeniable. That momentum isn’t a sign to relax — it’s a signal to sprint.
Get Them Up to Speed
Despite big advancements in the research, many people still don’t know what Rett syndrome is and why it matters. This cheat sheet gives you the fast facts to spark new conversations and connections to help close that gap.
Conversations Starters
Talking about the Rett experience and the impact of the research attracts attention, gains support, and accelerates the progress. Here are the tools that help boost the signal:
Not just posts — conversation starters. We wanted to arm you with a solid mix of bold, eye-catching designs built to spark curiosity.
Turn your social profile into a megaphone. Frames that invite people to talk about Rett. Easy to use — your face, your story, amplified. We’ll be adding more every week this month.
Pocket-sized punch! Share these business card sized graphics online or print them same-day at a local shop. You can customize them with your child’s photo — turning awareness into something personal and undeniable.
Whether you're speaking with local news, a podcast, or any platform, this quick guide helps you represent RSRT and the Rett community as one voice — amplifying awareness and impact wherever you share your story.
What Progress Looks Like
Progress doesn’t live in theory — it shows up in moments like these: breakthrough partnerships, global recognition, and science that’s sprinting forward. Each headline here tells part of a bigger story: Rett is moving from the margins to the spotlight.
Monica's unwavering Commitment to Cures
In 2024 we celebrated the remarkable role that our founder has played in advancing Rett syndrome research for over 25 yeras. The progress we’ve made toward curing Rett is thanks to many people — but we can all agree that Monica has been the driving force! Watch this heartwarming video tribute.
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