Financials
ANNUAL REPORT 2018
Press Releases
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January 30, 2020
We’ve awarded $8.6 million in 2019 to preeminent researchers in our pursuit of a cure.
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January 22, 2019
We’ve awarded $10 million in 2018 to preeminent researchers in our pursuit of a cure.
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September 25, 2018
RSRT Names Timothy A. Riley Chief Scientific Officer and Chief Business Officer; Randall Carpenter Transitions to Chief Medical Officer
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June 14, 2018
Marc Tesler Joins Rett Syndrome Research Trust Board of Trustees
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January 30, 2018
Rett Syndrome Research Trust Awards $6.2 Million in 2017 to Speed a Cure for Rett Syndrome
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January 25, 2018
James Wilson, MD, PhD, from the University of Pennsylvania, Joins the Rett Syndrome Research Trust’s Gene Therapy Consortium
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October 5, 2017
RSRT Launches Rett Syndrome Clinical Trial Consortium with $1.8 Million Award
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June 7, 2017
AveXis to Advance Gene Therapy Program Initiated by the Rett Syndrome Research Trust
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March 22, 2017
The Rett Syndrome Research Trust Announces Roadmap to Cure Devastating Neurological Disorder that Afflicts 350,000 Girls and Women
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JULY 25, 2016
Philanthropist Alba Tull Joins RSRT Board of Trustees – Tull Family Foundation Contributes $500,000 to Speed to a Cure
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JULY 7, 2016
ArmaGen and RSRT Collaborate to Develop Novel Therapeutic for the Treatment of Rett Syndrome
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MARCH 8, 2016
$9 Million Awarded to Rett Research
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FEBRUARY 24, 2016
RSRT Names Randall L. Carpenter as Chief Scientific Officer
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NOVEMBER 25, 2015
MECP2 Duplication Syndrome is Reversible
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MARCH 11, 2015
Length Matters: Rett Syndrome May Result from Overexpression of Long Genes
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FEBRUARY 3, 2015
Rett Syndrome Research Trust Awards $5.8 Million to Advance the Development of Treatments and Cures for Rett Syndrome and MECP2 Disorders
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January 28, 2014
Momentum Builds in Rett Research as RSRT Awards a Record $7.2 Million in 2013
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August 20, 2013
First Pre-Clinical Gene Therapy Study to Reverse Rett Symptoms
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July 28, 2013
Statins Suppress Rett Syndrome Symptoms in Mice
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June 25, 2013
Rett Syndrome Research Trust Hires Program Director to Focus on Fundraising and Organization Growth
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June 19, 2013
Award-Winning Documentary on Rett Syndrome Holds D.C. Premiere July 9th Panel Discussion with Institute of Medicine President, Leading Rett Scientist, Filmmaker and Disease Advocate
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June 16, 2013
The Rett Syndrome Protein Surrenders Some of its Secrets
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April 9, 2013
British Partner Joins Board of Global Group Striving to Reverse Rett Syndrome
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February 13, 2013
Treatment for Rett Syndrome Moves a Step Closer as RSRT Commits Record $4.2 million in 2012
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October 26, 2012
RSRT Welcomes David Scheer and James Trainor to Advisory Council
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March 18, 2012
Bone Marrow Transplant Arrests Symptoms in Model of Rett Syndrome
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November 1, 2011
Rett Syndrome Research Trust Launches Awareness Campaign in Iconic Times Square Location
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September 7, 2011
Rett Syndrome Research Trust Creates MECP2 Consortium
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June 29, 2011
A Role for Glia in the Progression of Rett Syndrome
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June 2, 2011
Adult Brain Requires MeCP2 for Proper Functioning
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April 27, 2011
Anthony P. Schoener Appointed to the Board of the Rett Syndrome Research Trust
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November 10, 2010
New Data Uncover Common Molecular Pathways Between Rett Syndrome, Autism and Schizophrenia
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September 29, 2010
Rett Syndrome Research Trust Marks Two-Year Anniversary with Launch of Gene Therapy Projects
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July 21, 2010
New Research Trust Dedicated to Furthering Treatment of Rett Syndrome Launched in the United Kingdom
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March 30, 2010
Melior Enters Drug Discovery Collaboration with Rett Syndrome Research
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February 25, 2010
MeCP2 Goes Global – Redefining the Function of the Rett Syndrome Protein
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September 14, 2009
Building on Progress Reversing Childhood Neurological Disease, Rett Syndrome Research Trust Establishes Professional Advisory Council
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August 24, 2009
Rett Syndrome Research Trust Funds Innovative Research at UCSF to Accelerate Drug Discovery
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June 17, 2009
Nobel Laureate J. Michael Bishop Joins the Scientific Advisory Board of the Rett Syndrome Research Trust
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February 22, 2009
RSRT Advisor Makes Significant Discovery with Potential for Novel Therapeutic Approaches
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September 25, 2008
The Rett Syndrome Research Trust Launches Operations