Events account for more than 50% of funds raised for RSRT.

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Rohan’s Quest 2018

August 25, 2018California

ROHAN’S MESSAGE TO US ALL Although our life is hard at times, Rohan provides a perspective … we are incredibly lucky that we can walk, talk, eat, laugh, make choices … pursue our dreams …. In other words, lead a “normal” life! It is this lack of “normalcy” that brings…

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Reverse Rett Melbourne

September 8, 2018International

In honor of their daughter Mia and the 350,000 other children and adults living with Rett Syndrome worldwide, Adrian and Chantal Mancini are hosting The First Annual Reverse Rett Melbourne Australia Gala on September 8. All support goes to RSRT to help it push ahead with its strategic research plan,…

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Reverse Rett DC

September 24, 2018DC

With love and optimism in our hearts we invite you to join us at Reverse Rett Washington DC, a special event to benefit the Rett Syndrome Research Trust (RSRT). We are the parents, grandparents, relatives, and friends of children afflicted with Rett, a severe neurological disorder caused by a random…

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Quest for a Cure

Septemer 30, 2018Michigan

The 9th annual Quest for a Cure Walkathon will be held at VFW Park in Royal Oak, Michigan. Please join the eight Detroit-area families that organize this fun event and the hundreds of supporters who come out to make a difference to the research.

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Reverse Rett LA

October 12, 2018California

Imagine your daughter, your sister, your granddaughter living with the symptoms of autism, cerebral palsy, Parkinson’s, epilepsy, and scoliosis all at once. Imagine that she developed normally as a happy little girl until she was two years old. She starts to walk, to say words, to explore the world around…

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Happy Hour to Help End Rett

October 13, 2018Pennsylvania

With tremendous gratitude and optimism, we invite you to the Fifth Annual Happy Hour in honor of our daughter Brynn and 350,000 others who struggle so bravely with the devastating symptoms of Rett Syndrome. As always, every dollar contributed goes directly to the Rett Syndrome Research Trust. Last year you…

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Jocelyn’s Journey

October 20, 2018California

With love, optimism, and gratitude in our hearts, we invite you to join us at Jocelyn’s Journey 2018. This is a very special year for our event. It’s special because it’s our last event. We are so proud of all we have accomplished and the critical role we’ve had in…

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Reverse Rett Utah

October 26, 2018Utah

With love and optimism in our hearts we invite you to join us for Reverse Rett Utah, a special event benefitting the Rett Syndrome Research Trust (RSRT). Rett Syndrome is the devastating neurological disorder that afflicts our daughters and more than 350,000 others. The symptoms of Rett are like having…

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Reverse Rett NYC

November 7, 2018New York

With love, optimism, and gratitude in our hearts we invite you to join us for the tenth annual Reverse Rett NYC. This year’s event is more important than ever. The first gene therapy clinical trial, an approach that attacks the root cause of Rett, is in development and expected to…

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Cure MECP2 Bucks County

March 9, 2019Pennsylvania

The Rett Syndrome Research Trust’s Duplication Fund spurs and supports research on MECP2 Duplication Syndrome, a devastating neurological disorder. With support from the Duplication Fund, in 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated for the first time that a dramatic reversal of Duplication Syndrome is possible. Her…

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Reverse Rett Minneapolis 2019

April 2019Minnesota

We’re so excited for Reverse Rett Minneapolis 2019. Spearheaded by Sarah & Lindsay Knapp, Amy & Joel Anderson, Mary & Dave Backer, and other Twin City area families and their friends, this beautiful and moving event, now in its second year, raises significant funds and makes a major difference to…

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