Events account for more than 50% of funds raised for RSRT.

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EVAning of Hope

July 8, 2017 @ 6:00pmNew York

Aimee and Al Fini and their family invite you to EVAning of Hope 2017, a special event benefitting the Rett Syndrome Research Trust. 100% of proceeds go towards research that is leading to treatments and a cure for Eva Fini and 350,000 other brave and beautiful girls and women who…

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Art for Ruby

2017Maryland

On behalf of Ruby Randol and 350,000 other girls and women suffering with Rett Syndrome, please support RSRT’s Roadmap to a Cure as generously as possible. We thank you from the bottom of our hearts.   Committee Megan & Rick Abbruzzese Ridgley & Justin Bowman Emmie & Dave Frank Meaghan…

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Rides for Rett

August 19, 2017Pennsylvania

Chris and Amanda Cope and Tony and Pam Scarano invite you to the Fourth Annual Rides for Rett Car Show on Saturday, August 19, 2017 in Berwick, PA. This is a benefit event and all proceeds will support the Rett Syndrome Research Trust. The car show is in honor of our…

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Cure MECP2 Bucks County

September 14, 2017Pennsylvania

The Rett Syndrome Research Trust’s Duplication Fund spurs and supports research on MECP2 Duplication Syndrome, a devastating neurological disorder. With support from the Duplication Fund, in 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated for the first time that a dramatic reversal of Duplication Syndrome is possible. Her…

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For Love of Lily

September 20, 2017 @ 6:00pmPennsylvania

Lily Fromm, 2 ½, is my granddaughter. Because Lily lives with a terrible disorder called Rett Syndrome, Bill Payne and I are inviting you to a special For Love of Lily cocktail and dinner benefit. We are raising money to support the Rett Syndrome Research Trust (RSRT), which funds research leading to treatments…

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Happy Hour to Help End Rett

October 7, 2017Pennsylvania

A special evening in the heart of Philadelphia to benefit the Rett Syndrome Research Trust and its bold three-year strategic research plan, Roadmap to a Cure. Launched early in 2017, Roadmap to a Cure prioritizes research approaches that attack Rett at its genetic root. The goal is to dramatically change…

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Reverse Rett LA

October 13, 2017 @ 7:00pmCalifornia

Imagine your daughter, your sister, your granddaughter living with the symptoms of autism, cerebral palsy, Parkinson’s, epilepsy, and scoliosis all at once. Imagine that she developed normally as a happy little girl until she was two years old. Then, suddenly, she stops. She loses the ability to balance, to use her…

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Jocelyn’s Journey

October 21, 2017California

Bridging the gap between hope and a cure! Jocelyn’s Journey is an annual event that raises funds in support of research that is moving us towards effective treatments and, ultimately, a cure for Rett Syndrome, a severely debilitating neurological disorder.  100% of Jocelyn’s Journey funds are directed to the Rett…

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Reverse Rett NYC

November 13, 2017 @ 6:30pmNew York

We are beyond excited to announce this year’s Reverse Rett NYC. In March of 2017 the Rett Syndrome Research Trust announced a bold three-year, $33 million strategic research plan called Roadmap to a Cure. It’s the culmination of years of research progress, which you helped make possible by your past…

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