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Become A Global Registry Pioneer

The Rett Syndrome Global Registry is expected to launch mid-2021. The registry will tap into parents’ valuable day-to-day experience with their child, and provide new and unique tools to manage their child’s care, all while advancing research and therapeutic development.

We are looking for families to join our Global Registry Pioneer program and enter data before the launch. The Pioneer program will allow the registry to launch with a foundational dataset and be of immediate use. From there the registry will grow in value with each new family that registers and contributes their important information and experience.

Please register below to become a Global Registry Pioneer and we will contact you with more information and updates on progress.