University of Rochester Study: Auditory Processing in Rett Syndrome
The University of Rochester is conducting a research study examining how the brain processes sound and sensory information in individuals with Rett syndrome.
The study uses electroencephalography (EEG), a safe and non-invasive method of recording brain activity, to identify patterns that may help researchers better assess cognition in Rett syndrome.
Who may participate:
Individuals with Rett syndrome and a genetically confirmed MECP2 mutation may be eligible. Participants must be past the clinical regression stage, have no known hearing impairment, and have no additional neurological or genetic diagnoses beyond Rett syndrome.
What participation involves:
Participants complete an EEG session during which they listen to tones through headphones. A caregiver is also asked to complete surveys and an interview about their child’s symptoms, daily functioning, and behaviors.
Study visits last approximately 3–4 hours, and participants are compensated $18 per hour.
Location and flexibility:
Study visits take place at the University of Rochester Cognitive Neurophysiology Lab in Rochester, NY. The study team can also accommodate in-home visits and participation at family meetings or conferences.
For more information, contact Jamison Seabury at:
