NYU Seizure Study Needs Your Videos
March 19, 2025
We’re excited to collaborate with NYU’s Comprehensive Epilepsy Center.
Calling all caregivers willing to share videos of their child experiencing seizures or seizure-like events.
Dr. Orrin Devinsky and Dr. Dana Price at NYU are investigating how accurately parents and epileptologists can classify seizure types and siezure-like events in rare genetic epilepsies using smartphone devices.
Please take a look at the criteria below to see if you qualify, and to find contact information.
Who can Participate:
Ages 3 months to 35 years old.
Confirmed genetic diagnosis of: SYNGAP, CDKL5, MECP2, CACNA1A, STXBP1 or KCNQ2.
Can provide videos of seizures or seizure-like events, ideally accompanied by a video EEG recording.
For more information, reach out to Kim Nguyen at
