“The outpouring of people who support our event each year has humbled us. I’ve learned that people want to help us, and an event gives them a way to do it.” Beth Jones Jocelyn’s Journey

Start Your Own Event

Events are critical to making the research possible. Anyone affected by Rett can start an event  — parents, grandparents, brothers, sisters, aunts and uncles, friends. An event can be whatever you envision  a picnic in a park, a backyard BBQ, a happy hour at your favorite bar, or a gala. A common misperception is that you need to have wealthy connections to hold an event. This isn’t the case at all. Everyone wants to give to this cause when they have a way to do it through an event, and every contribution matters to the research.  We hope you will join the team of other families that spearhead events. It’s empowering and gratifying to know that you are making a difference. Tim Freeman is here to help you every step of the way.

More Information Get In Touch

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Check out the events that are happening around the country and get involved. If an event is happening in your area, let us know, and we can connect you with the organizers. If you don’t live there any events, you can still get involved. Do you have any family or friends who live near an event who could attend and support? Can you provide auction items or do you know anyone might become a sponsor? Contact Tim to brainstorm ideas.

View All Events


There are other ways to fundraise for the research and speed us to a cure. First, it’s important to know some basics about philanthropy: over 95% of households give to charity; the average annual household total contribution to charity is almost $3,000; nearly 75% of giving comes from individuals (foundations and corporations are a small piece of the pie). People are generous and want to help a compelling cause like ours, and it’s not just the wealthy who give – everyone will happily give if asked or given a reason.  Here are some other ways to help:

  • Do a letter or email campaign to your friends and contacts. Contact Tim and he can help you draft it and even mail it out for you.
  • Support for RSRT comes from connections. Do you have a connection to a philanthropist or foundation? It’s in their interest to give away money, and they look for good causes to support. Contact Tim to brainstorm on how to approach them.
  • Do you live outside of the USA? You can still support RSRT. Contact Tim to find out how.
  • Other ideas?