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Sadie | Make Rett History

Meet our little girl, Sadie.

Like most little kids her age, she loves watching Mickey Mouse Clubhouse, reading silly books and being pushed on a swing at the playground. Unlike her pals, Sadie cannot walk, she isn’t able to speak anymore and she can no longer purposefully use her hands. Rett Syndrome has robbed Sadie of her independence. She is trapped in her body, with sound intellect, but no way to communicate.   

 Rett Syndrome is a debilitating neurological disorder that is caused by a random mutation on the X chromosome and affects 350,000 girls and womenEvery 90 minutes a girl is born with Rett Syndrome. After breast cancer, no other female disease affects more people. Baby girls appear completely normal at birth, but devastating symptoms await.

 There is a silver lining, however. Rett Syndrome has been proven in labs to be curable and reversible. Numerous clinical trials are underway to develop treatments that will allow girls with Rett Syndrome to be more functional and Gene Therapy holds the promise of a complete cure.

Watching Sadie struggle with every task she attempts is devastating. As time passes she doesn’t get stronger and gain skills, she falls farther behind. Rett Syndrome is ruthless. But, all hope is not lost. Rett Syndrome is believed to be curable and symptoms reversible. The single gene mutation that causes Rett has been precisely located and multiple lab experiments have proven that correcting the mutation can restore full neuronal function. Sadie can have a future free of Rett Syndrome. We are doing everything possible to make this a reality while Sadie is young, to give her the childhood she so deserves.

Help us Make Rett History.

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