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Rohan’s Quest for a Normal Life 2016

We are overwhelmed and deeply moved by your care, compassion, and wonderfully generous support. Thank you so much for making our First Annual Rohan’s Quest for a Normal Life Fundraiser a success! It gives Rohan and others like him who are affected by MECP2 Duplication, hope and a chance at a healthy and normal life.  Some of you who attended the “Night in Spain” met Rohan for the first time and he was very happy to see that so many awesome people care about him and his friends.

Together, YOU contributed over $86,000, a number which keeps going up every day! This makes a significant difference to the science that the Rett Syndrome Research Trust is spurring to move us closer to a day when MECP2 Duplication Syndrome can be reversed. The research of Dr. Huda Zoghbi at Baylor College of Medicine, with RSRT’s backing, is especially promising. You can learn more about Dr. Zoghbi’s promising research by clicking here.

If you have not had a chance to contribute yet, or if you are moved to provide further support for the research, of course we welcome it. 

Thank you!

Rajeev, DipikaAashna (Rohan’s 11 year old sister)

 

ROHAN’S MESSAGE TO US ALL

Although our life is hard at times, Rohan has taught us about the profound role of luck, determination, hard work, purpose and empathy. To have a “normal” life is a more fundamental idea than what we do for a living, which school we went to or the size of our house. His life has shown us the good that exists in our world and the many wonderful people who make daily sacrifices for bettering the lives of others in the world. Thanks to all the talented caregivers, teachers, therapists, doctors, researchers and loving and supportive family and friends like you, even Rohan has been lucky. We strive to make a difference in the lives of others as that is the only way to make our own lives richer and the world a better place. No matter how bad things may seem for us we are luckier than 99% of the people in the world. Rohan is our HERO!

Sponsorship Levels

Heroes of Rohan: $25,000

Supports a senior postdoc
salary for 6 months. This
person will be in charge
of executing on all the
experiments in the lab.

+ 10 Tickets

+ Listing on website

+ Recognition as requested

Knights of Rohan: $5,000

Supports one osmotic pump
to deliver the drug treatment
to a mouse

+ 8 Tickets

+ Listing on website

+ Recognition as requested

Champions of Rohan: $2,500

Supports the purchase of
two MECP2 Duplication
Syndrome mice

+ 6 Tickets

+ Listing on website

+ Recognition as requested

Fans of Rohan:
$1,000

Supports a month’s supply
of critical lab materials

+ 4 Tickets

+ Listing on website

Friends of Rohan: $500

Supports housing and vet costs
for 1 mouse for 6 months

+ 2 Tickets

+ Listing on website

Tickets: $100

Couldn‘t make it? Make a donation!

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Thank You for Your Sonsorship!

Thank you so much for your sponsorship purchase for Rohan’s Quest for a Normal Life 2016! You will receive an email receipt and we will be in touch with you soon to gather more information.

Thank You for Your Journal Ad!

Thank you so much for your sponsorship purchase for Rohan’s Quest for a Normal Life 2016! You will receive an email receipt and we will be in touch with you soon to gather more information.

Thank You for Your Purchase!

Thank you for purchasing tickets to Rohan’s Quest for a Normal Life 2016! You will receive an email receipt and we will be in touch with you for more information about guest list.

Thank You for Your Donation!

Thank you so much for your donation to Rohan’s Quest for a Normal Life 2016! You will receive an email receipt for this transaction.