Donate Now

Reverse Rett LA 2016

Looking for the current event? CLICK HERE

No mere “thank you” does justice to what we, the Reverse Rett LA Gala Co-chairs, want to say to you. We are overwhelmed by your generosity and by your commitment to helping us change not only our own daughters’ lives, but also the lives of more than 350,000 other brave girls and women who struggle every moment with the devastating symptoms of Rett Syndrome. You, our wonderful friends and colleagues, made last Thursday evening a huge success. At last count we are approaching $900,000 raised through the event, with contributions still coming in every day.

As you heard in our remarks and in the event video, there are times when we can’t help but feel unlucky; after all, our daughters bear the heavy burden of a random genetic mutation. But we also have so many reasons to consider ourselves lucky—the mutated gene that causes Rett is known, giving researchers a target to focus on; and Rett has been proven to be curable in mouse models. The Rett Syndrome Research Trust, as you heard from Chief Scientific Officer, Dr. Randall Carpenter, has developed a three-year strategic research plan that prioritizes gene therapy and other approaches that have the greatest potential to reverse Rett. In fact, Rett Syndrome very well could be the first neurological disorder for which there is a cure. Your support makes possible this potentially historic scientific advance.

Perhaps most of all, we feel so lucky to have you so firmly and strongly behind our cause. We thank you from the bottom of our hearts.

Warmly,

Stephanie & Andy Bohn
Heidi & Jonathan Epstein
Marci & Rudy Valner

 

EVENT Co–CHAIRS

  • Stephanie & Andy Bohn
  • Heidi & Jonathan Epstein
  • Marci & Rudy Valner

EVENT Committee

  • Denise & Robert Barta
  • Dahlia & Art Bilger
  • Allison Brandt
  • Jill & Bob Bronstein
  • Andrea & Ron Bryman
  • Carrie Carowan
  • Beate & Christopher Chee
  • Mary & John Conlin
  • Carolyn & Kevin Cozen
  • Mindy Weiss & Robert David
  • Daniell & Daniel Elperin
  • Sarah Gililand & Patrick Ewald
  • Gayle & Marc Ezralow
  • Lani & Brad Fauvre
  • Samantha & Jonathan Firestone
  • Carin & Glenn Freeman
  • Maryl Georgi
  • Ann & Jim Gianopulos
  • Jill Goldstein & Nikki Weiss-Goldstein
  • Debi & Marc Graboff
  • Linda Greller
  • Janis & Keith Gurnick
  • Irene & Nick Hedges
  • Lisa Dubbe-Herbert & Darrell Herbert
  • Lisa & David Hernand
  • Brenna & Mike Johnson
  • Robin Kurtzman
  • Susan & Rick Kurtzman
  • Cindra Ladd
  • Ann & Steve Levit
  • Ellen & Harry Levitt
  • Rachel & Dan Levy
  • Debbie & Jimmy Lustig
  • Lawrence Mattis
  • Colleen & Damon Mintzer
  • Julie & Ken Moelis
  • Cara & Russell Munn
  • Mina & Jack Neuberg
  • Sari Ockner
  • Karen Richards Sachs & David Sachs
  • Leslie Romenesko & Eric Chandeze
  • Robyn & Marc Sidoti
  • Stephanie Siemiller
  • Paulina & Carlos Smith
  • Jenny & AJ Tesler
  • Stephanie & Leon Vahn
  • Debbie & Arthur Valner
  • Monica & Sandor Valner
  • Joanne & Bill Vuylsteke
  • Rhonda & Mark Wapnick
  • Meredith & Sam Weiner
  • Shari & Michael Weiner
  • Ophelia & Adam Weiss
  • Michelle & Christopher Wolf
  • Cindy & Andrew Yoon
  • Arlene Zweben

JUNIOR COMMITTEE

  • Danielle Valner
  • Alex Valner
  • David Alagem
  • Jennie Arad
  • Berni Barta
  • Lexi Barta
  • Marni Barta
  • Romi Barta
  • Dan Belldegrun
  • Keith Black
  • Danielle Dolinsky
  • James Dunleavy
  • Jennifer Epstein
  • Shelby Fox
  • Adam Friedman
  • Shaun Gordon
  • Matthew Gorman
  • Alexa Graff-Radford
  • Mari & Cameron Henderson
  • Rachel Hays
  • Nanea Miyata
  • Michael D. Ratner
  • Rachel Rovner
  • TJ Taylor
  • Matty Tellem
  • Jason Vahn

 

Our Wonderful In-Kind Sponsors

h4hg-logos3

Sponsorship Opportunities

Emerald: $50,000

Funds a full-time postdoctoral
fellow for one year in an RSRT
research project. Fellows are
critical to the research that
will ultimately lead to a cure.

• 25 Event Tickets

• Full Page Digital Ad

Premiere: $25,000

Supports the cost of enrolling one patient in a clinical drug trial.

• 20 Event Tickets

• Full Page Digital Ad

Diamond: $10,000

Funds a clinical trial coordinator for 3 months at a Rett Syndrome clinic.

• 15 Event Tickets

• Full Page Digital Ad

Platinum: $7,500

Funds gait analysis in a robotics lab for 10 children participating in a clinical trial.

• 10 Event Tickets

• Full Page Digital Ad

Gold: $5,000

Funds a lab technician for 3 months working exclusively on a Rett project.

• 6 Event Tickets

• Full Page Digital Ad

Silver: $2,500

The cost of whole genome sequencing for one patient to look for modifier genes to improve the severity of Rett symptoms.

• 4 Event Tickets

• Full Page Digital Ad

Bronze: $1,000

Supports the purchase of a clinical-grade biometric watch that gathers critical physiological data including seizures and stress levels.

• 2 Event Tickets

• Full Page Digital Ad

Tickets: $300

Tickets (Under 30): $150

Couldn‘t make it? Make a donation!

Donate Now

Thank You for Your Sonsorship!

Thank you so much for your sponsorship purchase for Reverse Rett LA 2016! You will receive an email receipt and we will be in touch with you soon to gather more information.

Thank You for Your Journal Ad!

Thank you so much for your sponsorship purchase for Reverse Rett LA 2016! You will receive an email receipt and we will be in touch with you soon to gather more information.

Thank You for Your Purchase!

Thank you for purchasing tickets to Reverse Rett LA 2016! You will receive an email receipt and we will be in touch with you for more information about guest list.

Thank You for Your Donation!

Thank you so much for your donation to Reverse Rett LA 2016! You will receive an email receipt for this transaction.