Out Run Rett 5K 2016
Out Run Rett 5K is an opportunity to encourage community support for girls who are sidelined from so many of even the simplest activities because of Rett Syndrome.
Maren DeSantis, a Mattituck resident, was diagnosed with Rett Syndrome in December 2012. Right before her first birthday, Maren lost her words and the ability to stand, walk, and use her hands. Simply, Rett is horrible. But with the tangible hope of transformative treatments on the horizon, Maren and another young girl in Southold may be granted a future unburden from the effects of one faulty gene. The Out Run Rett 5K is an opportunity to raise needed research funds and encourage community support for two of Southold’s youngest residents and all the girls who are sidelined from even the simplest activities because of Rett Syndrome. Come show your support on the beautiful North Fork this spring and run so that one day she can!