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Out Run Rett 5K

Run, Walk, Cheer, SO SHE CAN

Maren, of Mattituck NY, was diagnosed with Rett Syndrome in December 2012. Right after her first birthday, our bubbly and babbling baby girl almost overnight and completely unexpectedly, lost her words and the ability to stand, walk, and use her hands. In the last years, Maren has become essentially “locked in” a body that does not work and sidelined from even the simplest of activities. Rett takes so much from Maren and we are so fearful of what could still come. We hear daily about families facing difficult choices on feeding tubes and scoliosis surgery, girls in the ICU struggling with pneumonia, and the worst but all too common, a young girl losing her fight to Rett. Unfortunately, Maren is not alone. Two towns over, Rachel is also battling Rett and together, they join a too long list of every 1 in 10,000 girls that are born with Rett.

But along with this terrible diagnosis comes amazing and tangible hope. Rett is a single gene disorder and scientist have reversed Rett in the lab. Advances in gene therapy are pointing the way to fixing the disorder at its very core in human patients with the first clinical trial possible in 2019. Out Run Rett is an opportunity to raise needed research funds to accelerate progress—we are truly out running Rett. Our Run Rett has also become a celebration of the wonderful Southold Town community that shows so much love and support for two of its youngest residents. We are so grateful to so many for all the support over the years. So, come join us on beautiful North Fork this spring and run, walk or cheer so that one day she can.

Teams welcome. And because they were so much fun last year, superhero costumes encouraged.

 

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Race/Registration Info

Registration Fees for Adult: $25  | Youth (15 & Under): $15

Awards are given to the TOP 3 in each age group:

1-9, 10-19, 20-29, 30-39, 40-49, 50-59, 60-69 and 70-79

T-Shirts are guaranteed to the first 300 registrants.

Sponsorship Opportunities

PLATINUM: $1,000

• Largest Logo/Name T-shirts

• Listing + Link on Website

• Featured on Event Signage

• 4 Race Entries/Bibs

Purchase Now

GOLD: $500

• Large Logo/Name on T-shirts

• Listing on Website

• Featured on Event Signage

• 4 Race Entries/Bibs

Purchase Now

SILVER: $250

• Logo/Name on T-shirts

• Listing on Website

• Featured on Event Signage

• 2 Race Entries/Bibs

Purchase Now

BRONZE: $100

• Listing on Website

• Name on Race Shirts

• 1 Race Entry/Bib

Purchase Now

*if received by (enter date here)

Can‘t come? Any Donations are Appreciated!

Donate Now

Thank You for Your Sonsorship!

Thank you so much for your sponsorship purchase for Out Run Rett 5K! You will receive an email receipt and we will be in touch with you soon to gather more information.

Thank You for Your Journal Ad!

Thank you so much for your sponsorship purchase for Out Run Rett 5K! You will receive an email receipt and we will be in touch with you soon to gather more information.

Thank You for Your Purchase!

Thank you for purchasing tickets to Out Run Rett 5K! You will receive an email receipt and we will be in touch with you for more information about guest list.

Thank You for Your Donation!

Thank you so much for your donation to Out Run Rett 5K! You will receive an email receipt for this transaction.