EVAning of Hope 2017
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We are overwhelmed by the incredible support and compassion of so many people. Thanks to you, we set new records this year at EVAning of Hope, with more than 400 people attending and total dollars raised of over $230,000. This is remarkable, and all of you, our amazing friends and family, made it happen. Most important of all is the impact this will have on Eva and all girls and women with Rett. RSRT’s strategic plan, Roadmap to a Cure, is prioritizing four potentially curative approaches, with gene therapy as the lead program.
The first ever human clinical trial for Rett in gene therapy is being planned now. One day soon we know we will all be celebrating together when Rett Syndrome has been cured. Until that day, we thank you from the bottom of our hearts for your tremendous support and commitment to Eva and 350,000 other girls and women who struggle with Rett Syndrome.
EVANING OF HOPE COMMITTEE
Albert Fini
Aimee Fini
Chris Fiorillo
Dr. Gerard Galarneau
Cynthia Ilardi
Michelle Patel
Sponsorship Opportunities
Sponsor $10,000
Helps defray the cost of
developing vectors (used to transfer genetic material into a cell) for gene therapy, a highly promising approach.
– 12 Tickets to Event
– Introduction & Signage
– Website Listing
– Featured on Invitation*
Eva’s Hero $5,000
Helps support the enrollment of a patient in a clinical trial of a drug that could significantly alleviate symptoms.
– 10 Tickets to Event
– Introduction & Signage
– Website Listing
Eva’s Knight $2,500
Supports analysis of a drug’s impact on breathing in two children.
– 8 Tickets to Event
– Introduction & Signage
– Website Listing
Eva’s Champion $1,500
Supports the screening of 15 compounds that could have the effect of replacing the faulty Rett gene.
– 6 Tickets to Event
– Introduction & Signage
– Website Listing
Eva’s Friend $1,000
Supports the screening of 10 compounds that could have the effect of replacing the faulty Rett gene.
– 4 Tickets to Event
– Introduction & Signage
– Website Listing
*If received by April 28
(Please submit by June 24th to be included in Signage & Digital Ad)
Digital Journal Ads
Full Page Ad $1,200
Half Page Ad $600
Quarter Page Ad $300
Listing Ad $75
(Please submit by June 24th to be included in Signage & Digital Ad)
