HELP US MAKE RETT HISTORY
In March 2017 we launched our strategic research plan, Roadmap to a Cure. The culmination of decades of research, the plan describes four cutting-edge approaches that could cure Rett by attacking the root cause of the disorder. Of these, gene therapy is the closest to the clinic and will be our lead program. The Roadmap has a three-year timeline and will cost $33 million.
Since our launch in 2008 we have raised $47 million, almost none of which has come from corporations, large foundations or random philanthropists. Nearly every dollar has come from affected families and their networks of relatives, friends, colleagues and neighbours.
We now have to raise $33 million in less than three years. Raising this amount quickly requires the urgent support of the global Rett Syndrome community. Do you want a cure for Rett? If so, we invite you to play a vital role by fundraising for Roadmap to a Cure.
We have our own crowdfunding platform: RettGive. We can get a page up for you quickly and easily. All you need is a short paragraph about your child and a few photos or a brief video. Then you’re off and running with your own campaign. Explore our current campaigns and get a sense of what they’re like. Contact us to get started.
GET STARTED NOW
Become a Roadmap Trailblazer!
Trailblazers are families, individuals, and Rett organizations that have made generous multi-year pledges in support of Roadmap to a Cure. Trailblazer pledges start at $10,000. Contact us to learn more or to make a pledge.
Meet the trailblazers
Connections, connections, connections!
Do you know someone who is connected to a foundation or is a philanthropist?
They are looking for good causes to support. We’ll help brainstorm ways to approach them.