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Become A Global Registry Pioneer

By becoming a Rett Syndrome Global Registry Pioneer you will get early access to the Global Registry, where you can share information about your loved one and see aggregated data about the Rett community. We’ve designed a HIPAA-compliant, high-quality database that helps you make sense of all the information you know about your child and that biopharmaceutical companies will use to design more efficient drug studies and get effective Rett treatments to market sooner.

The power of the Global Registry comes from the quality and volume of the information that you and other Rett families share — and its power grows every time you add new information and every time a new Rett family joins. Global Registry Pioneers will pave the way for the rest of the Rett community by creating a foundational data set. Pioneers will get registry access in early 2022. Learn more about the Global Registry here.

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