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Rett Syndrome Research Trust
Virtual Reverse Rett NYC 2020
When
Wednesday, November 11, 2020
6:30 PM

Virtual Reverse Rett NYC 2020

Our cause, research on Rett Syndrome, is more urgent than ever. Our loved ones with Rett struggle with respiratory issues and underlying health problems so they’re especially vulnerable to COVID-19. We simply must change their lives. All our hopes and dreams lie with the Rett Syndrome Research Trust, the non-profit in which we place tremendous confidence. And all our hopes and dreams lie with you, our remarkable and loyal supporters who make this research happen.

This year’s Reverse Rett NYC will be virtual. Everyone’s health and wellbeing are most important. Even though we won’t get to see you, we hope to raise $600,000 to support an especially promising RSRT project: The Rett Syndrome Gene Therapy Program at the University of Pennsylvania. UPENN has the largest academic gene therapy program in the world. It is led by pioneering gene therapy expert Dr. James Wilson, who discovered the AAV9 vector, the gold standard for delivering healthy genetic material. One of Dr. Wilson’s key goals is improving delivery of genes to the brain, crucial to the success of gene therapy for Rett.

We ask for your most generous support possible to help RSRT carry out this project and change 350,000 lives. Thank you with all our hearts.

Co-Chairs

  • Stephanie & Andy Bohn
  • Stephanie & Joaquin Bouzas
  • Rachel Clarke & Tim Freeman
  • Elizabeth & Jonathan Easton
  • Heidi & Jonathan Epstein
  • Megan & Mark Grgas
  • Hope Goldstein
  • Lawrence Mattis
  • Erika & Thomas Oelkers
  • Colleen & Joseph Palmer
  • Amy & Tony Pasquariello
  • Jesse & Jeremy Randol
  • Maggie & Gene Rogers
  • Rachel & Jason Rothschild
  • Christine Salerno
  • Innes & Dmitri Smolansky

Committee

  • Thomas Atlas
  • Javon Bea
  • Renuka Bellamkonda & Ravi Chigurupati
  • Jeff Callis & Chris Marrone
  • Jennifer & Stephen Davis
  • Virve & Michael Deutsch
  • Stephanie & Sean Doyle
  • Heather & Jordan Epstein
  • Lauren & David Freylikhman
  • Ruee & Vishal Gawarikar
  • Elaine & Thomas Giannetti
  • Jill & Mark Goodfellow
  • Valerie & Michael Goodwin
  • Rachel & David Grandwetter
  • Susan Grgas
  • Liz & Chris Griffett
  • Kim & Blake Gronich
  • Wendy & Steven Gronich
  • Elizabeth Hallock
  • Violaine & Kris Herlitz
  • Leslie & Mark Hoffman
  • Priyanka Joseph & Nithin Eapen
  • Michelle & Sonny Kalsi
  • Nancy Kiesendahl Bloch
  • Melani Kodikian & Kyle Burrows
  • Paula & Matthew Loeb
  • Jennifer & Thomas Lopez
  • Zhengrong Lu & Zhe Wang
  • Renée & Evan McGraw
  • Melissa Morton
  • Reshma & Hardeek Patel
  • Kristin Polizzotto & David Glick
  • Jeff Pomeranz
  • Raquel & Antonio Priolo
  • Lindsay & Scott Reardon
  • Catherine & John Romano
  • Marsha & Paul Rothschild
  • Malgorzata & Rafael Severyn
  • Merrill & Steve Tesler
  • Yen & Rich Tesler
  • Julie Vance
  • Lillian & Josh West
  • Maggie & Brian Wurm
  • Jill & Michael Yusko
  • Brad Zelinger
  • Jennifer Zeller & John Singer

Sponsorship Opportunities

Breakthrough
$50,000

Funds development of the vector that will improve
transfer of healthy genetic material to the brain

  • Featured on webpage
  • Featured on invitations*
  • Zoom call with researchers
Discovery
$25,000

Supports the project’s collaboration with the UPENN Vector Core Services, which has over a decade of experience in the production of viral-based vectors for gene transfer

  • Featured on webpage
  • Featured on invitations*
  • Zoom call with researchers
Progress
$10,000

Supports therapeutic efficacy studies that will assess the vector’s impact

  • Featured on webpage
  • Included on invitations*
  • Zoom call with researchers
Research
$7,500

Funds toxicology studies that ensure proper dosage amount and safety

  • Listing on webpage
  • Included on invitations*
Experimentation
$5,000

Helps defray the cost of preparing an Investigational New Drug Application that will set the stage for clinical trials

  • Listing on webpage
  • Included on invitations*
Groundwork
$1,000

Helps support the cost of equipment and supplies vital to the project

  • Listing on webpage
*Please make your sponsorships by September 15 to be included on the invitations

Make A Donation

Make Checks Payable To
Rett Syndrome Research Trust
67 Under Cliff Road
TrumbullCT 06611
Please write “Virtual Reverse Rett NYC 2020” on the memo line of your check.