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Rett Syndrome Research Trust
Reverse Rett LA 2020
When
Friday, October 30, 2020
5:00 PM

Reverse Rett LA 2020

Our cause, research on Rett Syndrome, is more urgent than ever. Our loved ones with Rett struggle with respiratory issues and underlying health problems so they’re especially vulnerable to COVID-19. We simply must change their lives. All our hopes and dreams lie with the Rett Syndrome Research Trust, the non-profit in which we place tremendous confidence. And all our hopes and dreams lie with you, our remarkable and loyal supporters who make this research happen.

This year’s Reverse Rett LA will be virtual. Everyone’s health and wellbeing are most important. Even though we won’t get to see you, we hope to raise $1 million to support an especially promising RSRT project: The Rett Syndrome Gene Therapy Program at the University of Pennsylvania. UPENN has the largest academic gene therapy program in the world. It is led by pioneering gene therapy expert Dr. James Wilson, who discovered the AAV9 vector, the gold standard for delivering healthy genetic material. One of Dr. Wilson’s key goals is improving delivery of genes to the brain, crucial to the success of gene therapy for Rett.

We ask for your most generous support possible to help RSRT carry out this project and change 350,000 lives. Thank you with all our hearts.

Co-Chairs

  • Stephanie & Andy Bohn
  • Heidi & Jonathan Epstein
  • Jenny & AJ Tesler
  • Marci & Rudy Valner

Committee

  • Adele & Trevor Abramson
  • Sophie & Alan Alpert
  • Kelsey & Chris Arms
  • Valerie & Matthew Baker
  • Denise & Robert Barta
  • Susan & Jon Berger
  • Dahlia & Art Bilger
  • Allison Brandt
  • Jill & Bob Bronstein
  • Andrea & Ron Bryman
  • Beate & Christopher Chee
  • Mary & John Conlin
  • Brenna Cox
  • Carolynn & Kevin Cozen
  • Mindy Weiss & Robert David
  • Sarah Gilliland & Patrick Ewald
  • Gayle & Marc Ezralow
  • Lani & Brad Fauvre
  • Samantha & Jonathan Firestone
  • Allison & Kevin Foley
  • Carin & Glenn Freeman
  • Malin Delling & Devin Fromm
  • Maryl Georgi & Jason Grode
  • Ann & Jim Gianopulos
  • Jill Goldstein & Nikki Weiss-Goldstein
  • Debi & Marc Graboff
  • Linda Greller
  • Janis & Keith Gurnick
  • Lisa Dubbe-Herbert & Darrel Herbert
  • Lisa & David Hernand
  • Mike Johnson
  • Beth & Dennis Jones
  • Lauren & Josh Kearney
  • Melani Kodikian & Kyle Burrows
  • Robin Kurtzman
  • Susan & Rick Kurtzman
  • Cindra Ladd
  • Ann & Steve Levit
  • Rachel & Dan Levy
  • Debbie & Jimmy Lustig
  • Lawrence Mattis
  • Kathleen & Troy Miller
  • Julie & Ken Moelis
  • Cara & Russell Munn
  • Mina & Jake Neuberg
  • Sari Ockner
  • Barbara Panasewicz
  • Leslie Romenesko & Eric Chandeze
  • Karen Richards Sachs & David A. Sachs
  • Claudia Schwartz
  • Robyn & Marc Sidoti
  • Stephanie Siemiller
  • Paulina & Carlos Smith
  • Laura & Paul Szymanski
  • Alba & Thomas Tull
  • Stephanie & Leon Vahn
  • Debbie & Arthur Valner
  • Monica & Sandor Valner
  • Joanne & Bill Vuylsteke
  • Rhonda & Mark Wapnick
  • Meredith & Sam Weiner
  • Shari & Michael Weiner
  • Ophelia & Adam Weiss
  • Cindy & Andrew Yoon
  • Arlene Zweben

Junior Committee

  • Danielle & Sean Abramson
  • Alex Valner
  • David Alagem
  • Michelle Barrett
  • Berni Barta
  • Lexi Barta
  • Marni Barta
  • Romi Barta
  • Dan Belldegrun
  • Keith Black
  • Olivia Davis
  • Frankie Delgado
  • James Dunleavy
  • Jennifer Epstein
  • Shelby Fox
  • Preston Fielding
  • Milo Frank
  • Adam Friedman
  • Shaun Gordon
  • Danielle & Matt Gorman
  • Alexa Graff-Radford
  • Rachel Hays
  • Mari & Cameron Henderson
  • Sari & Kevin Hoban
  • Alexa Kort
  • Arielle Levitt
  • Kaely Levy
  • Nicole & Michael Lipp
  • Max Lipsett
  • Nanea Miyata
  • Adam Moelis
  • Cory Moelis
  • Jordan Klein Moelis & Jordan Moelis
  • Paige Moelis
  • Max Moray
  • Samantha Moray
  • Lily Mummert
  • Luke Pelullo
  • Michael D. Ratner
  • Scott Ratner
  • Andrew Riley
  • Zachary Robinow
  • Sarah & Matt Salter
  • Maya Shemesh
  • Joe Silberzweig
  • Julie & Brandon Silverstein
  • Amy Soloway
  • Monica Stainer & Michael Wapnick
  • Elias Tanner
  • TJ Taylor
  • Matty Tellem
  • Lexi Tick
  • Jason Vahn
  • Michael Vann
  • Gabriela Valner
  • Amanda & Greg Wapnick
  • Maia & Matt Wapnick

Sponsorship Opportunities

Lead Scientist Benefactor
$100,000

Supports the lead scientist on the project, one of the world’s leading gene therapy experts

  • Featured on webpage
  • Featured on invitations*
  • Zoom call with researchers
  • Tour of lab when appropriate
Breakthrough Sponsor
$50,000

Funds development of the vector that will improve transfer of healthy genetic material to the brain

  • Featured on webpage
  • Featured on invitations*
  • Zoom call with researchers
Discovery Sponsor
$25,000

Supports the project’s collaboration with the UPENN Vector Core Services, which has over a decade of experience in the production of viral-based vectors for gene transfer

  • Featured on webpage
  • Featured on invitations*
  • Zoom call with researchers
Progress Sponsor
$10,000

Supports therapeutic efficacy studies that will assess the vector’s impact

  • Featured on webpage
  • Included on invitations*
  • Zoom call with researchers
Research Sponsor
$7,500

Funds toxicology studies that ensure proper dosage amount and safety

  • Listing on webpage
  • Included on invitations*
Experimentation Sponsor
$5,000

Helps defray the cost of preparing an Investigational New Drug Application that will set the stage for clinical trials

  • Listing on webpage
  • Included on invitations*
Exploration Sponsor
$2,500

Supports attendance at scientific meetings to review results, key to translation of discoveries to clinical impact

  • Listing on webpage
Groundwork Sponsor
$1,000

Helps support the cost of equipment and supplies vital to the project

  • Listing on webpage
*Please make your sponsorships by August 15 to be included on the invitations

Make A Donation

Make Checks Payable To
Rett Syndrome Research Trust
67 Under Cliff Road
TrumbullCT 06611
Please write “Reverse Rett LA 2020” on the memo line of your check.