Chinese Translations
The Chinese translations comes courtesy of Simon (Tiantian’s Father) and Fisher (YaYa’s father). If you would like to volunteer to translate our website into a particular language please contact us at info@rsrt.org
研究进展 | research information
关于 RSRT 组织 (可信赖的雷特综合症研究组织) | About RSRT & Rett
This document has information about RSRT and Rett Syndrome.
针对 MECP2 基因的标靶治疗方法 | Treatments Under Development
This is a chart of therapies currently being pursued.
雷特研究当前状态 | The Current State of Rett Research
A summary of current research projects and avenues that show promise.
临床试验和研究 | All RSRT-Funded Projects
A translation of all RSRT-funded projects and studies.
新闻报道 | news articles
站在巨人的肩上 | On the Shoulders of Giants
January 24, 2019 – Randy, Jana and Tim from the RSRT team have a message to the families who work hard to raise funds for research.
是什么导致MECP2重复综合征中 MeCP2蛋白质的毒性？ | What’s Making MeCP2 Toxic in Duplication Syndrome?
January 14, 2019 – Guest writer Martha Koerner, PhD, explores why MeCP2 is toxic in Duplication Syndrome.
Rett超级英雄 | Rett Superheroes
January 4, 2019 – RSRT’s Tim Freeman expresses gratitude to the families that fundraise to help speed us to a cure for Rett Syndrome.
和您的医生聊聊 | Talk To Your Doctors
November 14, 2018 – An important guest post from a father who experienced first-hand how difficult it can be to transition from pediatric care to general practice physicians for a daughter with Rett Syndrome.
开展一项临床试验需要哪些条件？| What Does it Take to Run a Clinical Trial?
November 6, 2018 – Jana von Hehn describes the process of starting and sustaining a clinical trial and what comes after.
攀登新高峰 | Moving the Needle
October 29, 2018 – Tim Riley explains his commitment to pursuing all pathways in order to find a cure by pushing boundaries with extreme motivation.
未来已来 | The Future is Now
August 7, 2018 – A post from Jana von Hehn, our Director of Research, discussing the fascinating advances in the scientific community and how it relates to the FDA drug approval process.
思想的盛会 | Meeting of the Minds
June 7, 2018 – This article explores the important objective set by RSRT to unite basic scientists with Rett clinicians in order to improve our chances for success.
世界级团队开始迈向下一代基因疗法 | World-Class Team Takes on Next Gen Gene Therapy
December 13, 2018 – This article is about our recently formed Gene Therapy 2.0 Consortium.
研究人类 MeCP2 蛋白功能的新方法 | New Method Developed to Study MeCP2 Function in
Humans
November 19, 2018 – Several leading researchers update us on a new approach for understanding MeCP2 function.
状态更新:Rett 的 AVXS-201 基因疗法 | UPDATE: AVXS-201 Gene Therapy for Rett Status
October 31, 2018 – An update on the AveXis Gene Therapy clinical trial progress.
远见与胆识 | | Vision and Guts – Monica Coenraads
March 4, 2018 – An article that discusses some key points to consider with the clinical trial announcement.
AveXis公司有关雷特基因治疗的报告 – AVXS-201 | AveXis Reports on Rett Gene Therapy Program: AVXS-201
February 28, 2018 – An update by AveXis on the current state of the clinical trial.
攻克雷特/治愈雷特真的不远了吗？ | Is a Cure for Rett Really Around the Corner? – Monica Coenraads
January 31, 2018 – An article that evaluates the reality of a cure.
攻克雷特/更多基金奖励 | Attacking Rett Where it Lives
May 24, 2016 – An article focussing on the latest funding awarded by RSRT.
雷特综合症临床试验在亚特兰大启 动 | Rett Syndrome Clinic in Atlanta Launches Clinical Trial
March 15, 2016 – An article focussing on the a recent clinical trial supported by RSRT.
9 百万奖励基金提供给研究 | $9 Million Awarded to Research
March 8, 2016 – An article highlighting the recent funding awarded by RSRT.
本站公告 | press releases
雷特综合征研究信托基金会向致力于治愈破坏性神经失调疾病的 杰出研究者们提供1,000万美元的资助 | RSRT Awards $10 Million to
Preeminent Researchers in Pursuit of Curing Devastating Neurological Disorder
January 22, 2019
雷特综合症研究信托基金在2017年为雷特综合症的治疗提供了620万美元| Rett Syndrome Research Trust Awards $6.2 Million in 2017 to Speed a Cure for Rett Syndrome
January 30, 2018